Supported research projects
UKCNRC provides critical support to UK-based clinical studies of childhood neurological conditions. Some of our supported studies and the services we have provided are listed below.
Paediatric UK Demyelinating Disease Longitudinal Study (PUDDLS - funded by the Multiple Sclerosis Society).
Investigators: Dr Evangeline Wassmer and Dr Michael Absoud, Birmingham Children’s Hospital.
Project details: UKCNRC has advised on the study protocol, recruited collaborating centres and helped with local NHS administrative authorisations.
Web: UK Childhood CNS Demyelinating Disease.
Multinational European Trial for Children with the Opsoclonus Myoclonus Syndrome/Dancing Eye Syndrome.
Investigator: Dr Mike Pike, John Radcliffe Hospital, Oxford.
Project details: UKCNRC provided hands-on support with writing the UK study protocol, patient information leaflet and other essential documents, and prepared and submitted a successful grant application on behalf of the study team.
Genetics of Cortical Malformations
Investigators: Dr Andrew Fry & Dr Daniela Pilz, Cardiff University.
Project details: UKCNRC provides publicity and networking to aid patient recruitment. Download study information.
Web: MRC Centre for Neuropsychiatric Genetics and Genomics
VIPS - Vascular Effects of Infection in Paediatric Stroke
Investigator: Professor Fenella Kirkham, Institute of Child Health, University College London.
Project details: UKCNRC prepared patient information sheets and other documents essential to activation of the study in the UK. Download study information.
Association between ADEM and vitamin D.
Investigator: Dr Christos Zipitis, Wrightington, Wigan and Leigh NHS Foundation Trust.
Project details: UKCNRC provides networking with the PUDDLS Study and essential contributions to the study design, planning and funding.
For researchers
UKCNRC supports researchers in their valuable and essential work by providing expert guidance, networking and administrative support, as well as research funding. If you are a professional scientist, please click here.
Research studies
UKCNRC is pleased to publicise the following studies to professionals. Please click on title to download study flyers.
We offer support and advice to prospective researchers along the route from project concept and planning, through regulatory and funding applications, to management, data analysis and publishable outcomes.
One in six people in the United Kingdom has a neurological illness. In spite of this, research into neurological conditions lags far behind illnesses such as cancer, where funding is more readily available. This is our case for support...
It is only through the kindness of donors that we are able to continue our work and with a charity of our size even the smallest donation makes a huge difference. All donations go directly towards supporting the activities of the charity