About us
UKCNRC was set up in January 2008 by the British Paediatric Neurology Association, a professional organization of doctors specializing in childhood neurology. The charity was initially seeded by funds from the BPNA but is now largely funded from other sources including charitable trusts and foundations, and is heavily reliant too on private donations.
The founding group of senior BPNA members was inspired by the great advances made in childhood cancer and leukaemia as the result of an integrated approach to research over the past 25 years – and foresaw similar benefits for children with neurological disorders if this approach was taken in their own field with appropriate resources made available.
The aim of UKCNRC is to act responsively to support researchers in paediatric neurology, with the goals of helping to make research proposals competitive, engaging clinicians and strengthening any component likely to lead to benefit to patients. We wish, in particular, to support collaborative multi-centre studies. UKCNRC is registered as a charity with the Charity Commission (Charity Number 1124250) and as a company at Companies House (Company Number 6474740).
The UKCNRC Board comprises Professor Galip Akay (lay member), Professor Helen Cross, Dr Rob Forsyth, Professor Colin Kennedy, Dr Richard Newton, Dr Mike Pike and President of the BPNA (ex Officio). This group constitutes the Directors of the Charitable Company.
The Board has delegated the research and development agenda to a Research Support Panel (RSP) operating as the Roald Dahl Child Brain Research Development Service. The RSP is chaired by Professor Colin Kennedy and comprises Dr Richard Chin, Dr Paul Eunson, Dr Vijeya Ganesan, Dr Rachel Kneen, Dr John Livingston, Dr Tim Martland (MCRN Neurosciences ex officio), Dr Finbar O’Callaghan, Dr Rod Scott, Professor Stefano Seri, Dr Evengeline Wassmer and Dr Jane Williams. The Research Support Panel is supported by Dr John Coleman, Research Coordinator.
Testimonials
“UKCNRC has been of huge assistance to the PUDDLS study; from the design and writing of the protocol to help with progressing R&D in individual centres and recruiting further centres to participate… also proved a massive difference with providing an avenue to … study extensions.”
Dr Michael Absoud, Clinical Research Fellow, Institute of Child Health, Birmingham Children’s Hospital
Support UKCNRC
Supporting research that will help children in the future like Reuben who has a rare form of epilepsy. To donate or help in any way, please click here.
We offer support and advice to prospective researchers along the route from project concept and planning, through regulatory and funding applications, to management, data analysis and publishable outcomes.
One in six people in the United Kingdom has a neurological illness. In spite of this, research into neurological conditions lags far behind illnesses such as cancer, where funding is more readily available. This is our case for support...
It is only through the kindness of donors that we are able to continue our work and with a charity of our size even the smallest donation makes a huge difference. All donations go directly towards supporting the activities of the charity