For researchers
UKCNRC was set up by the BPNA with the specific aim of facilitating and advancing research in childhood neurology. If you are a professional clinician or scientist working in this field then we invite you to take advantage of our services.We wish, in particular, to support collaborative multi-centre studies
Through the Roald Dahl Child Brain Service (RDCBS, see About us), we can provide advice, resources and services according to your needs. For example we can advise on study design, statistics and data management as well as navigation and practical support through research governance and funding. We can also provide guidance on relatively low-cost options for measuring neurocognitive and other outcomes of relevance to neurological disorders in studies of children, either indirect by questionnaire or direct by psychometric and other assessments.
John Coleman is an experienced researcher and can devote time and effort to improving your proposals. In his present role, he has contributed to successful grant and governance applications, and can provide similar support once a project has been considered by the RSP.
Although RDCBS is not primarily a review board, we can provide scientific review as a “test run” if requested. We do require standards to be met before we commit to a study and can work with you informally to refine a research proposal to meet the criteria that enable us to support your study fully.
We are an independent non-governmental organisation and not part of any NIHR structure or network, although we do have close links with the Medicines for Children Research Network. This means we have no obligatory role but we are on hand to provide practical help as needed rather than presenting any administrative barrier.
We do have limited funds available as seed funds for pump-priming or to support components of larger studies funded from other sources. Please enquire if you are interested.
Researchers with research plans at any stage from early concept through to funded studies are asked to complete our Research Proposal form that will be put to the Research Support Panel for consideration at the earliest opportunity.
Additional information
For further information or advice at any stage please do not hesitate to email info@ukcnrc.co.uk.
- You may view UKCNRC Research Support Panel regulations here.
- Minutes from the RSP meeting of 2nd June 2010 are here.
- Minutes from the RSP meeting of 13th December 2010 are here.
- Minutes from the RSP (RDCBS) meeting of 28th June 2011 are here.
- Minutes from the RSP (RDCBS) meeting of 7th December 2011 are here.
- Minutes from the RSP (RDCBS) meeting of 27th June 2012 are here.
- Minutes from the RSP (RDCBS) meeting of 11th December 2012 are here.
Disease Registry Initiative
With generous input from Roald Dahl’s Marvellous Children’s Charity, UKCNRC is pleased to announce an exciting new initiative for disease registries in paediatric neurology. Under the scheme UKCNRC can provide advice, support and staff time for networking, data management etc. For more details download our proposal form here. Application deadline 19 April 2013.
Our Research Coordinator
Dr. John Coleman joined UKCNRC after many years as a senior investigator and team leader in pharmacology at Liverpool University. He has extensive experience of the medical research environment in the UK and internationally, with a long record of successful grant funding and publications.
"I strongly encourage researchers looking for guidance at any stage of the research process, or seeking start-up funds or hands-on support, to get in touch with UKCNRC."
Research studies
UKCNRC is pleased to publicise the following research groups and associated studies. Please click on title for web link.
We offer support and advice to prospective researchers along the route from project concept and planning, through regulatory and funding applications, to management, data analysis and publishable outcomes.
One in six people in the United Kingdom has a neurological illness. In spite of this, research into neurological conditions lags far behind illnesses such as cancer, where funding is more readily available. This is our case for support...
It is only through the kindness of donors that we are able to continue our work and with a charity of our size even the smallest donation makes a huge difference. All donations go directly towards supporting the activities of the charity